Emmanuel Kafti Mawrides

• Elvas, Luìs B. & Mawrides, Emmanuel Kafti (2024). Empowering patient-centric health data exchange : a blockchain-based framework for secure and efficient data sharing . Molde University College - Specialized University in Logistics. ISSN 978-82-7962-371-7. Vis sammendrag

  In the healthcare sector, the sharing of sensitive health data poses substantial privacy and security challenges that must be navigated with utmost care. With health data recognized by the European Commission as a unique and valuable resource for both retrospective and prospective research, and the Organisation for Economic Co-operation and Development (OECD) advocating for robust health data governance, there is a clear directive to harmonize individual privacy with the need for data accessibility. This paper proposes a conceptual blockchain framework designed to empower patients in the management and sharing of their medical information. Through this framework, patients would assume the role of data custodians, with the authority to grant access to their health records as they see fit. By leveraging blockchain technology's inherent qualities of decentralization, immutability, and transparency, our framework ensures that data sharing is secure, patient-centered, and conducted under the patient's consent. This approach not only upholds the privacy and autonomy of individuals but also streamlines the data sharing process. It is particularly advantageous for research centers, which can access necessary data without the procedural delays associated with traditional ethical approval processes. Our conceptual framework aims to redefine health data exchange, prioritizing patient control and trust, while fostering a more efficient and collaborative research environment.

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